5 weeks post op

Quick update on William. We had a checkup today with cardiology. William was stressed from the moment we pulled into the hospital. We tried cheering him up as best we could with ring pops and new toys, but he’s just traumatized and it’s going to take time. He had an echo today and he cooperated but cried the entire time. Immediately after it was over, he was chatty Kathy again. Go figure.

Williams’ heart looked good and the echo showed his fenestration is still open. There are mixed opinions on a fenestrated Fontan but from what we understand, it’s worth it. It basically acts as a pop off valve for when there is too much blood flow.

William saturation’s are around 92-93%. He looks and feels great. We watched a little bit of the horse race this weekend and ever since, he’s been running laps around the kitchen island saying he’s racing. He definitely has more energy than he had before, which we didn’t think was possible! He lost about 1/2 a pound but we will work to get this back. He’s still in the positive from when we were discharged so his doctors are not concerned.

Our next check up is in 4 weeks, and we are off chest restrictions in 3 weeks! We are really looking forward to resuming normal activities!

Go Boy Go! ❤️